Do we have to go it alone? Of course not.
Do we sometimes feel like we cannot turn to anyone? Sometimes.
Should we feel that way? No you don’t have to feel that way because when you unite as a team it’s harder to knock you down because you’re all standing for the same cause, for the same hope, for the same realisation.
Lately I’ve been thinking about various topics one’s that mean great importance however the questions I’ve just asked above don’t need to be answered in a disappointing manner. In fact no one should ever feel like they’re alone because you aren’t alone.
To me I’m a bit of both sort of girl i.e. I like to have my own space to have that me time ranging from watching films to just listening to music that makes me smile and uplifts my mood. On the flip side I’m all for team work communication particularly where we can all come together whatever the scenario and just be ourselves, to get a job done and know we have that success that only team work can bring.
There’s occasionally that feeling when you’ve had an epileptic episode that you want to be on your own and that is understandable.
There are moments where you’re afraid to be alone out of worry that another seizure will take hold shortly after resulting in further anguish and concern. This in itself is a daunting prospect.
For many who use the words “Well you’ve got nothing to worry about” cannot truly see at times how difficult having any condition can be and depending upon the attitude can be hard to accept.
Nowadays I look and think that people have our best interests at heart therefore instead of biting their head off and throw a tirade of huffing and whinging thank the person in question for their well wishes and continue as normal. I have my moments still, I’m only human but I’m getting there.
A piece of news that to me was an achievement in itself and a massive woooo for Sazzle’s blog. Some may say it’s nothing to me it felt like I was on cloud nine.
Last week I received an email from a charity who in times of need has made such an impact on my life. They had confirmed that they had seen my blog and enjoyed reading it. To receive any form of positive feedback is bloody marvellous in itself however to be approached by a charity as significant as this one made me feel extremely happy. In fact it made me want to continue writing.
The charity in question was Young Epilepsy a UK based charity that specialise in promoting Epilepsy awareness, offering education, day to residential services and general advice on Epilepsy. It’s goal is to work toward better futures for young lives with Epilepsy. Their website makes me proud to be British and truly offers some vital statistics about understanding our condition. It’s one step closer to accepting what we have.
To be given the honour to write something for them made me jump at first because as a youngster I too was one of the children out there that needed someone outside of the box, to give me the help I truly needed and they did for me. I would urge anyone reading if they are concerned about their condition in any way, shape or form to do the same.
To write a post for them towards Epilepsy awareness week and to promote Epilepsy awareness through not only the image above but to my followers who have educated me and been my lifeline in times of need.
As I grow older it’s glaringly obvious to me that one of the greatest achievements in life is happiness and accepting oneself.
Over the past 21 years it has been a struggle, I would by lying to say it hadn’t been.
As you are all aware by now Epilepsy is a condition that nowadays effects 65 million people and has been renowned in my eyes as being the silent condition
For people who were oblivious as to who I was the only time they even realised there was “something the matter with me” was when I would have a seizure, a shaking episode or when I would go extremely silent.
To me coping with Epilepsy was something that effected my life in more ways than one.
My personality to a degree became effected and there I was questioning whether I would always have to depend solely on me or whether I could eventually let my guard down and be part of a team again.
To not feel like I was the odd one out and to know that I had given it my all condition or not.
There was a period in my life where although Epilepsy was still a major part of my life it had remained dormant.
The medication was to stop in my early teens along with the seizures and for a moment there felt like there was normality in my life like I was in the process of wanting to be free, free of epilepsy and just given the opportunity to be a teenager.
Four years passed seizure free, relatively no problems however in the back of my mind there was this fear that would rear it’s ugly head and there was many a moment where I would have to refrain from drifting back into old patterns such as negativity and doubt.
Instead of appreciating the seizure free times there was this person who wouldn’t allow Epilepsy to leave her and who allowed for a significant amount of time for Epilepsy to dominate her life along with other past times that by now you’re all aware of.
There came a stage as I reared my twenties where I thought to myself that Epilepsy was a part of me however it was never going to be solely what I was known for. I didn’t want to be renowned as being the girl who had the odd convulsion, who was repeatedly taken home because the shakes had taken hold or the sickly child that at the age I am now can laugh at with my nearest and dearest. I wanted to be more than a word, a statistic, I just wanted to be Saz.
As I reminisce about my personal journey with Epilepsy it gets me thinking about how others perceive Epilepsy, how Epilepsy can be stigmatised and how people who aren’t fully aware of what our condition is can be very misguided and can misread the tell tale signs therefore raising awareness is crucial to not only our welfare but the welfare of others.
Whether you be a child at school, college, university or breaking free into what my parent’s would call “the big wide world” I can sympathise with the apprehension Epilepsy can bring out of fear that you will not be perceived as being normal however this couldn’t be any farther from the truth.
You are within yourself a fighter, a warrior but most importantly a survivor because everyday you’re proving to not only yourself but the loved ones who choose to provide that support to you that you are marching to your tune and not necessarily the tune of others.
You’re proving that Epilepsy won’t define you and that you like I was many moons ago can just be you and solely be the person with Epilepsy.
Below is some information that Young Epilepsy has given me that when I read it made me have butterflies inside. To think that Epilepsy awareness slowly but surely is starting to become a part of people’s conversations.
We’ve got a long way to go yet to achieve that further feeling of hope however to know that we are getting there should be an achievement in itself. Before I give you this information I would urge you to go and check out the Young Epilepsy website and see the marvellous things that they do.
Unfortunately for those who know me well will know I’m not the most technical (for crying out loud it took me over an hour to get this image at the top of my screen so I’m hoping this works) therefore please go to http://www.youngepilepsy.org.uk for further information. You never know by clicking this website could help you or the ones you love therefore give them that chance and have a browse.
When I read the following I was thinking “What” combine my condition with my love of Fashion and it makes my heart melt. Shame I couldn’t get 50% off!! Just kidding!
As I read it made me smile and I hope it does with you too.
Charities Young Epilepsy and Epilepsy Society have partnered up with British fashion retailer River Island during Epilepsy awareness week (18-24 May) to help raise epilepsy awareness of this widespread condition by launching the campaign “Everyone knows someone”
The “Everyone knows someone” campaign is designed to get everyone talking about this hidden condition.
The following infographic (the image shown at the start of my blog post) explains a little more about Epilepsy and how common it actually is.
To conclude today’s post. Epilepsy is a bugger at times I know however never give up.
If I was to offer a little bit of advice and take it as you will. As we approach awareness week we know that there are moments where we want to throw in the towel however knowing you’re not giving up is more of a success.
Never underestimate yourself, be happy with who you are, embrace what life has to offer, try to be accepting of the condition that challenges you but makes you see that you only have one life therefore grasp it with both hands and show the world what you’re made of.
You know you can so believe in you.